Wednesday, April 30, 2008
Nate
Tomorrow is his birthday! Three years old... I can barely believe it. I'm going to run by the store today to get birthday candles and the ingredients to make an easy cake (for everyone else to eat; I still have frozen leftovers of the GFCF cake for Nate).
Monday, April 28, 2008
Holding hands
Bible story
- We start the story with Genesis 1:1, which he has memorized: "In da beginning, God cweated da heavens and da earf!"
- God decided that Adam needed a "help-Nate."
- God told Adam and Eve not to eat from the tree of "knowledge of good and eeeevil."
- After they ate the fruit, they realized they had sinned, and they were ashamed, which means they were "vewy vewy sad and guilty."
So cute!
Saturday, April 26, 2008
Thursday, April 24, 2008
Full IEP report
Is it really Thursday already? I meant to write an update yesterday about the IEP meeting, but I spent all of my computer time listening to our recording of the meeting and writing detailed notes. I'm going to send those notes to the school district so they can include them on the IEP as an addendum.
The meeting and all in attendance were very pleasant. Afterwards, I wished I would have been a little stronger in resisting their putting Nate in the IBI tutoring, but I realized too that he probably still will do well in there, and if he doesn't, we can call another meeting.
Here are just some of my notes (with additional comments in grey). This is long, and it isn't even everything!
- We went over the few minor changes necessary in the assessments (just factual).
- Next, we went over the proposed goals:
- Occupational therapy (vestibular, grasping/drawing, tactile)
Will use gluten-free products - Speech/language
Answering a variety of “wh” questions/functional language
I asked about a goal for reducing Nate’s echolalia. The SLP said they usually don’t write a specific goal for that--usually it’s an elimination process because the child is comprehending more, and the echolalia decreases on its own. - Cognitive skills and pre-academic
The psychologist noted that these skills are on par for Nate’s age expectancy; she wrote goals to keep him moving along. - Adaptive physical education
Nate doesn't qualify for individual services for APE, but we included two related goals--using the pedals on a tricycle and learning playground games like red light green light. - Social goals (initiating play, increase play repertoire)
- Other goal parents brought up but that was not included:
Self-monitoring of his special diet. Psychologist and speech and language pathologist noted it was particularly difficult to write any sort of goal for this, especially because there aren’t any natural opportunities for choosing different foods at school besides what the child brings.
- Offer of program and parent response
- Special day class 8:30-10:45 five days/week
- IBI tutoring 10:45-1:30 five days/week
I noted that the we loved the SDC—the kids were talking to each other, interacting (things Nate needs to work on), and we liked the teacher. I noted that the IBI setting did not seem this way. The kids were not interacting, and there were many more apparent behaviors. I asked, “How is he going to work on talking with other kids if the other kids don’t talk?” The district preschool program specialist answered that the SDC feels natural, much like a typical preschool; she said the IBI clinic feels more sterile and is run a little differently—it’s highly structured and they’re really focusing on goals and objectives. She said that, because it is structured with so much adult support, kids really are able to make progress toward goals, especially abstract, social skills. (Hmmm, did this really answer my question? No!)
She continued by saying that IBI is an autism-specific class, so the kids in there do have language delays and difficulty with socialization. (She was saying this means they really do focus on the language and socialization in there, but in my mind I'm thinking, "Exactly! They have problems with those things! So how will Nate be able to interact with them?")
The psychologist noted that the IBI tutoring we observed was the 4-year-olds class, but that the 3-year-olds IBI tutoring class has a "different ambience." I asked, then, if Nate were to meet this year’s goals, would he not be in the 4-year-old IBI? She answered that most kids do continue in the IBI—just his goals would be changing. (Another answer I didn't like. If she was confirming that I shouldn't have been comfortable with how bad the 4-year-old IBI looked, then why would it be good for Nate to be in there when he is 4?)
The psych mentioned the mock Kindergarten program and other opportunities for inclusion and socialization/peer interaction for when kids turn 4. I asked would Nate be able to be in that mock K if he accomplishes these goals, or would we need to add more goals in order for him to be in the mock K? The psych answered that that is the goal; the SLP confirmed it is what we would anticipate, and the psych said that he is on target toward it. Jon and I noted that the mock K is what we want to shoot for.
I said that our main concern with Nate and the IBI is that his trouble is interacting not with other children with autism but interacting with typical peers, so we are hoping for as much exposure as possible to those typical peers that is appropriate. This is the area we see him struggling the most. The SLP responded that the theory is to teach them in the smaller group so he can gain the skills, even if it’s rote, and he can generalize to the special day class. More practice, less intensive teaching. (Overall, I am not happy with their responses to my questions about typical peer exposure, since they just talked around the issue and didn't really address our concerns.) - Group speech 15 minutes/week (this is basically nothing)
- Occupational therapy direct service 30 minutes/week
- Occupational therapy group 2x/month (with class)
- We talked about a transition plan; Nate will go at least the first few days (or week, or as long as I think it's needed) from 8:30-12:00 instead of all the way to 1:30. This means he'll be in the special day class until 10:45, then do lunch with the IBI class, then do recess, which ends at 12:00.
- We also discussed extended school year. Nate will attend the summer program, which ends July 25, but he will not have services in August. I pushed on this one for a while, but the only group-type program they have in August is for severely impaired children, so that wouldn't work for Nate.
Once I turn in our signed IEP and the registration packet, Nate will be starting next Friday, May 2!
Tuesday, April 22, 2008
IEP
Saturday, April 19, 2008
Diet update
This diet has been the best change we could have made for Nate.
Thursday, April 17, 2008
Weight loss update week 2
Wednesday, April 16, 2008
Potty training update
- Going without pants for a few days helped him figure out the feeling of needing to go.
- Once he figured out that feeling, he usually ran to the bathroom by himself (I'd follow).
- No rewards have been needed except for lots of praise.
- I figured out he can "hold it" for quite a long time (at least a couple of hours), so I don't need to prompt him very often to go--usually just before we leave for somewhere and after we get home.
- When he is in others' care (like in the nursery or at therapy), I tell the caregivers to ask him every once in a while if he needs to go. This seems to work fine, since he still has not quite gotten that he needs to tell someone before he goes.
He is now waking up dry after naps and in the mornings (I'm telling you--total non-issue!), though I still haven't braved putting just underwear on him overnight. :)
Lucy
Here's a video of her the other day dancing to an old VBS video.
Tuesday, April 15, 2008
Classroom observation
After having gone today, I am actually less sure about what I'd like to ask for for Nate. Before, when I thought the SDC was going to be full of lower functioning kids, I was against it. Now, when I see that it has some good components, I'm not sure.
Monday, April 14, 2008
Friday, April 11, 2008
Observation
I had been a little concerned that the observers (the school psychologist and the speech/language pathologist who originally evaluated Nate) were going to be observing him on a Friday, because 1) he is often tired by the end of the week and seems to pay less attention at Group and 2) his shadow on Fridays isn't Will; it's someone else who doesn't do a very good job of redirecting Nate if he gets distracted or whatever. However, Will said that Nate did an awesome job--he sang all the songs (sometimes on Fridays he zones out/stops singing by the end of song time, which is about 25 minutes), answered all the questions the song leader called out, raised his hand to volunteer for things, and participated very well. Will said the observers asked him (Will) a few questions, and they asked something like, "How are we even going to come up with areas for improvement for him?"
It sounds like a great morning. I'm hopeful it will add some ammunition to my argument that Nate shouldn't be put in the special day class.
Bad habits starting early?
Yesterday morning, Nate found the unopened apple juice container on the counter and asked for some juice. I told him that one was warm but the one in the refrigerator was cold, so I poured him some from the opened container.
Fast forward to the end of the day, around 7:00 p.m. He ran into the kitchen and said, "I want a cold one!"
Thursday, April 10, 2008
Weight loss update
Exercise one time? Check.
Eat more "intentionally" without unwise snacking (including no more finishing the kids' food)? Check.
Weight loss? Less than half a pound.
Huh? In my experience, the first week of purposefully eating better and exercising usually shows huge results because of water weight and whatnot, but not this time! I may have chosen a bad week during my month to begin, so I'm hoping next week will be much more fruitful.
If you are doing this "challenge" along with me, feel free to update your progress in the comments section.
Sunday, April 06, 2008
Pics
Party pics
Saturday, April 05, 2008
Potty training: a parent's equivalent to "hell week"
Here's how this all started. On Thursday, when I picked Nate up from the older kid nursery at MOPS, the worker asked, "Is he potty trained?" I answered no. She said, "That's what I thought. But when all the other kids were saying they had to go to the bathroom, Nate said he did too. So I took him, and he went." ... Wha?
Then, after his nap that day, Nate said something about going on the potty, so I took off his diaper, and he went. OK! We went the rest of the day diaperless and pantsless. It included three accidents but also three or four successes. I diapered him for bed time, and he did have a dirty diaper when I checked on him later.
The next day, Friday, he had therapy. I didn't want to keep him home because I hate having him miss therapy, so I took him. I packed a bunch of extra clothes and underwear (he didn't want to wear the plastic training pants I have) and pinned a sign on his back saying he was potty training. In the three hours of therapy that morning, he had one accident and one success. During the rest of the day, he did very well when naked and had a couple of accidents with underwear on. Another dirty diaper after bed time.
This morning, when he was playing on the computer and not wearing any pants, he looked at me and said, "Uh oh!" I asked if he had to go, and he said yes, so I rushed him to the bathroom, where he had his first (excuse all the toilet talk) BM. He was soooo proud.
So that's where we are. We'll see how the rest of the weekend goes. We have Lucy's little b-day party at the park today, where there is no bathroom, so I'll probably bring our little plastic toilet and see if Nate will use it.
Sibling fun
P.S. The "big boy underwear" is a whole other post (coming soon), but suffice it to say I cannot believe I'm doing this.
Thursday, April 03, 2008
Accountability
Kitchen Q&A
I'd like to start by saying that the colors are inspired by Ricci's new kitchen. :)
- Do you feed your kids something different than you and hubby eat? Same time or different? Sometimes I wish I could change this, but I feed them something different AND at a different time. Jon gets home too late from work, so I wait and eat with him. And I just haven't gotten talented enough to make one big meal that will work for everyone, including Nate's special diet.
- How many nights a week do you cook? Ga! Do I have to answer these incriminating questions? Actually cook a meal--probably 2 nights/week. Other nights are out with ministry (e.g., Awana), take out (probably 1 night/week), or something I think of as halfway cooking, like sandwiches or a frozen pizza.
- Do you follow a recipe exactly or improvise? The first time, I follow it exactly, and then I improvise in the future to our tastes.
- Do you cook and then do dishes before you eat or do it all after? Most dishes get done before we eat... usually.
- Does hubby or kids help in the kitchen? Nate helps empty the dishwasher, and Jon sometimes does the after-dinner dishes.
- How often do you try a new recipe? Once a month or less, but I want to be better about trying more.
- Do you try to use a sparing number of dishes to cook or say heck with it and dirty the whole kitchen? Sparing number.
- Do you plan a menu or cook on the fly? Although I've tried several times in the past to start figuring out weekly menus, I've never stuck with it. On the fly.
- How many nights is the TV on for dinner? Zero for the kids, almost all the time for Jon and me! We enjoy doing this together.
- Do you grocery shop once a week or several times? Oh, several times. I always need/want something from Trader Joe's, so I go there at least once or twice a week. The grocery store I have down to once a month or so. I also go to Mother's Market for Nate.
- Do you have more cookbooks than days in a week to use them? Yes! My favorites are my own recipe book with recipes from friends and family, and my Rachel Ray "Just in Time" cookbook.
- Which wins, good tasting or good for you, if you had to choose? Hmmm... For my eating personality, good for you. That way, I can eat a ton of it and not feel terrible about myself.
- Do you like to cook dinner or bake dessert better? Bake.
- How often do you cook breakfast for dinner in a month? Never, which is funny since I love it and Jon's favorite meal is breakfast. Time to get out the eggs and bacon!
Wednesday, April 02, 2008
Lucy is 1
What a fun, cute, sweet baby Lucy is. Her favorite things are her brother, any of his toys, telephones/remote controls, and her daddy. Her favorite activities are eating meat, pointing to pictures of people she knows, cruising along the furniture (she just took one small step not holding onto anything last night, too!), crawling super speed to Jon when he gets home, and laughing when I ask her to say "Mama."
It feels like she has gained some weight this past month, which would be good, so we'll see about that at her doctor's appointment on Friday.
We're having a small get-together on Saturday at the park where we'll play and let Lucy eat cake. I ordered one from The Sensitive Baker--it's GFCF so Nate can have it too!




(The birthday girl today)




















